Health-related stigma among women with lymphatic filariasis from the Dominican Republic and Ghana.
Identifieur interne : 006259 ( Main/Exploration ); précédent : 006258; suivant : 006260Health-related stigma among women with lymphatic filariasis from the Dominican Republic and Ghana.
Auteurs : Bobbie Person [États-Unis] ; L Kay Bartholomew ; Margaret Gyapong ; David G. Addiss ; Bart Van Den BorneSource :
- Social science & medicine (1982) [ 0277-9536 ] ; 2009.
Descripteurs français
- KwdFr :
- Adaptation psychologique, Adulte d'âge moyen, Attitude envers la santé (ethnologie), Concept du soi, Culture (sociologie), Famille (ethnologie), Femelle, Filariose lymphatique (ethnologie), Filariose lymphatique (physiopathologie), Filariose lymphatique (psychologie), Ghana, Groupes focalisés, Humains, Isolement social, Maladies endémiques, Prejugé, Qualité de vie (psychologie), Recherche qualitative, Relations interpersonnelles, République dominicaine, Santé des femmes (ethnologie), Stéréotypage.
- MESH :
- ethnologie : Attitude envers la santé, Famille, Filariose lymphatique, Santé des femmes.
- physiopathologie : Filariose lymphatique.
- psychologie : Filariose lymphatique, Qualité de vie.
- Adaptation psychologique, Adulte d'âge moyen, Concept du soi, Culture (sociologie), Femelle, Ghana, Groupes focalisés, Humains, Isolement social, Maladies endémiques, Prejugé, Recherche qualitative, Relations interpersonnelles, République dominicaine, Stéréotypage.
- Wicri :
- geographic : République dominicaine, Ghana.
English descriptors
- KwdEn :
- Adaptation, Psychological, Attitude to Health (ethnology), Culture, Dominican Republic, Elephantiasis, Filarial (ethnology), Elephantiasis, Filarial (physiopathology), Elephantiasis, Filarial (psychology), Endemic Diseases, Family (ethnology), Female, Focus Groups, Ghana, Humans, Interpersonal Relations, Middle Aged, Prejudice, Qualitative Research, Quality of Life (psychology), Self Concept, Social Isolation, Stereotyping, Women's Health (ethnology).
- MESH :
- geographic : Dominican Republic, Ghana.
- ethnology : Attitude to Health, Elephantiasis, Filarial, Family, Women's Health.
- physiopathology : Elephantiasis, Filarial.
- psychology : Elephantiasis, Filarial, Quality of Life.
- Adaptation, Psychological, Culture, Endemic Diseases, Female, Focus Groups, Humans, Interpersonal Relations, Middle Aged, Prejudice, Qualitative Research, Self Concept, Social Isolation, Stereotyping.
Abstract
People fearful of being stigmatized by a health-related condition often do not embrace prevention behaviors or seek medical help. They may adhere poorly to treatment regimes for disease and abruptly terminate much needed treatment. Globally, 120 million--many poor women--suffer consequences of lymphatic filariasis that include stigmatizing lymphedema or elephantiasis of the leg. We investigated how women with lymphedema from two different cultures experience stigma and its consequences. Our qualitative data were collected from 56 Dominican women and 48 Ghanaian women with lymphedema. A lymphedema-related stigma framework was developed from constructs derived from the literature and emergent themes from the data. Women described a spectrum of enacted, perceived, and internalized stigma experiences, such as being criticized and isolated by the community, health providers, and even by friends and relatives; they were often denied access to education and meaningful work roles. Some antecedents, consequences, coping strategies, and outcomes of these experiences varied across cultures, with Dominican women faring somewhat better than Ghanaians. Poverty, poor access to health care resources, limited education, and diminished social support challenged the coping strategies of many women and exacerbated negative consequences of lymphedema-related stigma.
DOI: 10.1016/j.socscimed.2008.09.040
PubMed: 18992982
Affiliations:
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Le document en format XML
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Addiss</name></author><author><name sortKey="Van Den Borne, Bart" sort="Van Den Borne, Bart" uniqKey="Van Den Borne B" first="Bart" last="Van Den Borne">Bart Van Den Borne</name></author></analytic><series><title level="j">Social science & medicine (1982)</title><idno type="ISSN">0277-9536</idno><imprint><date when="2009" type="published">2009</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Psychological</term><term>Attitude to Health (ethnology)</term><term>Culture</term><term>Dominican Republic</term><term>Elephantiasis, Filarial (ethnology)</term><term>Elephantiasis, Filarial (physiopathology)</term><term>Elephantiasis, Filarial (psychology)</term><term>Endemic Diseases</term><term>Family (ethnology)</term><term>Female</term><term>Focus Groups</term><term>Ghana</term><term>Humans</term><term>Interpersonal Relations</term><term>Middle Aged</term><term>Prejudice</term><term>Qualitative Research</term><term>Quality of Life (psychology)</term><term>Self Concept</term><term>Social Isolation</term><term>Stereotyping</term><term>Women's Health (ethnology)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adaptation psychologique</term><term>Adulte d'âge moyen</term><term>Attitude envers la santé (ethnologie)</term><term>Concept du soi</term><term>Culture (sociologie)</term><term>Famille (ethnologie)</term><term>Femelle</term><term>Filariose lymphatique (ethnologie)</term><term>Filariose lymphatique (physiopathologie)</term><term>Filariose lymphatique (psychologie)</term><term>Ghana</term><term>Groupes focalisés</term><term>Humains</term><term>Isolement social</term><term>Maladies endémiques</term><term>Prejugé</term><term>Qualité de vie (psychologie)</term><term>Recherche qualitative</term><term>Relations interpersonnelles</term><term>République dominicaine</term><term>Santé des femmes (ethnologie)</term><term>Stéréotypage</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Dominican Republic</term><term>Ghana</term></keywords><keywords scheme="MESH" qualifier="ethnologie" xml:lang="fr"><term>Attitude envers la santé</term><term>Famille</term><term>Filariose lymphatique</term><term>Santé des femmes</term></keywords><keywords scheme="MESH" qualifier="ethnology" xml:lang="en"><term>Attitude to Health</term><term>Elephantiasis, Filarial</term><term>Family</term><term>Women's Health</term></keywords><keywords scheme="MESH" qualifier="physiopathologie" xml:lang="fr"><term>Filariose lymphatique</term></keywords><keywords scheme="MESH" qualifier="physiopathology" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Filariose lymphatique</term><term>Qualité de vie</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Elephantiasis, Filarial</term><term>Quality of Life</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adaptation, Psychological</term><term>Culture</term><term>Endemic Diseases</term><term>Female</term><term>Focus Groups</term><term>Humans</term><term>Interpersonal Relations</term><term>Middle Aged</term><term>Prejudice</term><term>Qualitative Research</term><term>Self Concept</term><term>Social Isolation</term><term>Stereotyping</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adaptation psychologique</term><term>Adulte d'âge moyen</term><term>Concept du soi</term><term>Culture (sociologie)</term><term>Femelle</term><term>Ghana</term><term>Groupes focalisés</term><term>Humains</term><term>Isolement social</term><term>Maladies endémiques</term><term>Prejugé</term><term>Recherche qualitative</term><term>Relations interpersonnelles</term><term>République dominicaine</term><term>Stéréotypage</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>République dominicaine</term><term>Ghana</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">People fearful of being stigmatized by a health-related condition often do not embrace prevention behaviors or seek medical help. They may adhere poorly to treatment regimes for disease and abruptly terminate much needed treatment. Globally, 120 million--many poor women--suffer consequences of lymphatic filariasis that include stigmatizing lymphedema or elephantiasis of the leg. We investigated how women with lymphedema from two different cultures experience stigma and its consequences. Our qualitative data were collected from 56 Dominican women and 48 Ghanaian women with lymphedema. A lymphedema-related stigma framework was developed from constructs derived from the literature and emergent themes from the data. Women described a spectrum of enacted, perceived, and internalized stigma experiences, such as being criticized and isolated by the community, health providers, and even by friends and relatives; they were often denied access to education and meaningful work roles. Some antecedents, consequences, coping strategies, and outcomes of these experiences varied across cultures, with Dominican women faring somewhat better than Ghanaians. Poverty, poor access to health care resources, limited education, and diminished social support challenged the coping strategies of many women and exacerbated negative consequences of lymphedema-related stigma.</div></front></TEI><affiliations><list><country><li>États-Unis</li></country><region><li>Géorgie (États-Unis)</li></region></list><tree><noCountry><name sortKey="Addiss, David G" sort="Addiss, David G" uniqKey="Addiss D" first="David G" last="Addiss">David G. Addiss</name><name sortKey="Bartholomew, L Kay" sort="Bartholomew, L Kay" uniqKey="Bartholomew L" first="L Kay" last="Bartholomew">L Kay Bartholomew</name><name sortKey="Gyapong, Margaret" sort="Gyapong, Margaret" uniqKey="Gyapong M" first="Margaret" last="Gyapong">Margaret Gyapong</name><name sortKey="Van Den Borne, Bart" sort="Van Den Borne, Bart" uniqKey="Van Den Borne B" first="Bart" last="Van Den Borne">Bart Van Den Borne</name></noCountry><country name="États-Unis"><region name="Géorgie (États-Unis)"><name sortKey="Person, Bobbie" sort="Person, Bobbie" uniqKey="Person B" first="Bobbie" last="Person">Bobbie Person</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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